Imgur Customers Diagnosed This Woman’s Rare Disease Even Before Her Doctors Could
Most of us are guilty of heading to the Internet when something doesn’t feel right, and we usually find out that a sneeze is actually an allergic reaction to oxygen, according to WebMD.
But for 21 -year-old Cheyenne Rose, who posted her “Story of a Broken Dancer“on Imgur six months ago to tell thestory of her struggle with a strange condition that no doctor had been able to identify, it changed her life.
Rose grew up a committed dancer who dreamed of perform, but around the age of 12, she begansuffering many traumata, including dislocated appendages, agonizing seams, and brittle bones.
“It’s been my whole life, it’s everything I’ve ever wanted to do but I’ve been plagued by a number of harms, ” she said.
When shewas 12, shegot into a terrible biking collision, clicking herleft forearm in half. From that day on, being hospitalized became a really common existence for her.
“I germinated very fast, and owing to the fact that I danced 5 hours a day, 6 dates a week, my form didn’t develop properly, leaving my bones extremely brittle and my joints exceedingly loose, reaching transgres and dislocating my appendages an easy and often enterprise, ” she spoke.
Shespent three years on and off of crutches due to countless busted ankles, toes, dislocated hips and ruptured feet.
It went even worse that Rose was put into a wheelchair for a whole time at age 16, and was told that she’d maybe never dance again.
“I was dancing, and all I can remember is find like I had been shot in my right hip, my person confiscating up in pain, and collapsing, ” she articulated. “I couldn’t walk, I could barely sit, the only situation that they are able to allay( most) of my agony was lying down, taking any and all pressure off of my hip joints. I tried to stay positive, but being an athlete divulged to a pedal chair is a nearly impossible task to handle.”
Her post went on to recount multiple surgeries and infirmary abides, realise countless neurologists, neurosurgeons, spinal specialists, etc ., without anyone being able to tell her exactly what was wrong, yet still dancing minimally in between.
“I anticipated perhaps if there’s anybody out there going through what I am perhaps they’ll find some solace in that I’m still dancing, ” shesaid about her decision to pole her legend online.
She received support, but “shes been” received tons of peoplecommenting or contacting out to her directly suggesting that she look into Ehlers Danlos Syndrome( EDS ), Hyper Mobility Type III.
After doing some research and contacting medical doctors, Rose said she got experimented and detected she has the genetic disorder that affects connective tissues in the body.
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She took to Imgur once again to update parties and thank them for lastly affording her a chance to heal as best as she can.
” Don’t be fooled by my happy look, this isn’t great news, because there isn’t a’ antidote’ to this inherited disease ,” she wrote.” It’s something that I’m going to have to live with my entire life, but thanks to you fucking people, I finally have a identifications. I have been searching for a’ claim’ to what’s wrong with me for years, and if it weren’t for you all, I wouldn’t have one .”
She will be undergoing surgery this summer to restore her shoulder, which has been damaged by the disease.
” I’ve definitely is becoming more cautious, I’m extremely aware of my organization, what hurts, what doesn’t but as long as I can dance I’m not going to stop ,” she responded.” Not hitherto at least .”
You can speak more about Ehlers-Danlos Syndrome here, and Rose’s original Imgur post can be found here.
Via: Business Insider